It’s Been a Few Weeks, Not Much New

I haven’t posted an update for about three weeks.  In that time, my vision still sucks and I’m wondering if I made the right choice to have the surgery.  I visited the retina specialist on Tuesday and was told that there isn’t much difference on the macular edema from the last visit about a month ago (and that was only slightly different from earlier this year.)  Seems a bit odd since during my appointment in May, he was able to point out the differences with my OCT scan then and the one earlier this year.  I was also told that I had a bit of swelling in my cornea (cornea edema.)  I don’t recall if that was an issue at my last cornea doc visit, but I’m scheduled to visit him this coming Tuesday (22 June,) so I’ll ask.  At this point, my vision seems to fluctuate between slightly better than before the surgery to worse than before the surgery.

It is so frustrating to me that nothing can be done to get me back to where I was just days after the surgery.  For about 10 days from 18 April, my vision was the best it had been in years.  Seems now like that was a cruel tease.  I’m getting tired of running to the doctors multiple times per month and not making progress.

In other news, Jacob is in Japan with a group of students from Westtown.  The last few days they’ve stayed in Kyoto and taken day trips by rail to other cities and sites (Hiroshima, Miyagima-guchi, Miyagima, Kinkaku-ji.)  Sunday, they move on to Tokyo where they meet their host families and prepare for a week at Tamagawa, Westtown’s sister school in Japan.  The family Jake is staying with has a boy a year or two younger than Jake and seems to live a bit of distance away from the school.  Eliz and I hope Jake can manage the train transfers…

Jane is looking forward to meeting her favorite band All Time Low on Sunday at meet and greet during The Bamboozle Roadshow.  Monday, she heads to softball camp at Villanova for a week.  She is also doing two weeks at an overnight camp at Bryn Mawr College in July and going to the Outer Banks in August with Margaret, Meghan, and Chris.  Did I mention she spent yesterday (Thursday) in New York with her friend Rachel?

Since Eliz and Jane won’t be here on Sunday, I’m planning a day of football…  Well, at least the last two games (Azzurri/All Whites and Brazil/Ivory Coast (sorry Slovakia/Paraguay, I’m not rolling out of bed at 7.30am.)  So, if you want to watch some footie, come on over!

Finally, I’ve lost another pound, which I am trying not to do.  I’m trying to maintain 163 pounds, but have been between 161 and 162 the last couple of days.  I’ve bumped to 1800 calories per day (from 1700) to try not to lose any additional weight.  It’s been tough this week, because we’ve eaten out four times and I’ve had to estimate my calories once and calculate my calories after the fact another time.  By the time I added ‘em up, I was short by 200 calories (ate 1600 calories) and it was too late to have anything else if I wanted to go to sleep by 2.00am.  At 161, I’m down 73 pounds since I started on 10 December 2009.

More next week, after my cornea doc appointment.

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A Frustrating Week

Well, it has been a week of total frustration.  Since mid-afternoon last Thursday, my vision has not been good.  Every day when I wake up I hope that it will be better, but then I open my eyes.  I’ve got just under three weeks until I visit the retina doc again, but at this point, it seems pretty obvious to me that the drops aren’t working.

I’m pretty sure I’ve been less than a joy to be around this past week.  I have just been miserable.  Even watching the Flyers advance to the cup finals brought me down.  I was there in 1997.  Not this time.  No point in going.  I’ll watch it on TV though.

I’m tired of not being able to find things and having to ask Eliz for help.  I’m tired of bumping into door jams because I go a little wide right.  I’m tired of waiting and hoping.  I want to move forward.

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Wow, I was Wrong!

I say that like it doesn’t happen often.  Today I had an appointment to see Dr. Garg, the retina specialist I visited several times in January and February.  As far as I was concerned, he was my last hope of finding why I was having difficulty seeing over the last couple of weeks, after noticeably better sight after the cataract extraction on 15 April.  I mentioned in this space last week that I didn’t think he’d spot anything.  Fortunately, I was wrong!

After having difficulty reading the 20/200 line (their chart is different than all the others, the 20/200 line is CD not SL) I had my IOP taken (9 in the left, 28 in the right – that is high, but since there is no pain and virtually no sight, who cares,) I was given drops to dilate my eyes.  After a 10-15 minute wait, we went to another examination room.  Dr. Garg came in and asked me about the trouble I’ve been having and the surgery, then had a look.  He noticed something and said he would like me to have an OCT scan.  After another short wait, Tom called me in and did the OCT scan.  After another short wait, we went into a different exam room.

Dr. Garg came in and immediately said that I have Macular Edema.  I was pretty happy for a second.  I thought, “Wow, he actually found something!”  Then I though, “Uh oh, now what?”  I asked the doctor how it is treated and then I was happy again.  Eye drops (the name escapes me at the moment, but I think it begins with a D) four times per day.  That is easy enough.  He then showed Eliz and I (between my dilated eye and poor vision, I couldn’t really see much) the OCT scan from today and the one from 15 January.  He pointed out the difference in the one today, which Eliz was able to see.  After about two hours, we were done.  I go back in four weeks.

Today was the first of three doctor’s appointments for the week.  Tomorrow, I go to my general practitioner for a check-up.  Perfect timing for me to visit her, as I’ve had a sore throat for about eight or nine days.  I’m interested to see what she says about my weight.  I was in the mid-180′s the last time I was there in March.  I was 168 this morning.  I know many of you have been asking about how I dropped a total of 66 pounds since 10 December 2009 and want to know my secrets.  The short answer is 1500 calories a day and I weigh everything I eat at home (unless it is packaged, then I use the nutritional info on the package.)  When we’re out, I use the restaurant’s own nutritional info.  If a restaurant doesn’t provide the info, then I calculate it.  If I can’t calculate it, we don’t eat there.  Do you hear me Bertucci’s?  I’ve kept a food journal since February and I’ll post it soon (I wanted to do it a couple of weeks ago, but my vision issues got in the way.)  Friday, I visit Dr. Ayres for another post op check.

Lastly tonight, I went to Anthem Institute (formerly Chubb Institute) for a Graphic Design Advisory Board meeting.  It was both good and bad.  Good because I love talking about graphic design work, the industry, and the curriculum at the school.  They’re making some positive changes there that will give students a deeper design knowledge that should translate into being better prepared to land a job once they graduate.  The bad part about tonight was talking about new version of programs like Photoshop, Illustrator, InDesign, and Flash.  How is that bad?  I so want to use them, start shooting pictures again, shooting videos (and editing them,) and cool stuff like that, but my vision is not cooperating.  Maybe I’ll be able to get back to it once the drops work their magic…

Oh, and one last thing.  Really.  The parent daughter softball game is Thursday afternoon at Friends Central.  I am hoping to get an at-bat.  I will most likely strike out, if given the okay to hit, but I want to try.  I’ll let you know how it goes.  Fortunately, Lankenau Hospital is literally right around the corner…

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