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	<title>iCantCU.com &#187; congenital glaucoma</title>
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		<title>Retina Check</title>
		<link>http://www.iCantCU.com/2011/05/15/retina-check/</link>
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		<pubDate>Sun, 15 May 2011 19:52:40 +0000</pubDate>
		<dc:creator>david</dc:creator>
				<category><![CDATA[eye check]]></category>
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		<guid isPermaLink="false">http://icantcu.com/?p=400</guid>
		<description><![CDATA[It&#8217;s been awhile since I&#8217;ve posted. We&#8217;ve had a bunch of things going on that took (and still take) priority. Friday afternoon I visited Dr. Garg for an appointment. He is my retina doc. I was hopeful that Dr. Garg would spot something that could be corrected. My vision has been mired around 20/400 for [...]<p><font size="1"><a href="http://www.iCantCU.com/2011/05/15/retina-check/">Retina Check</a> is a post from: <a href="http://icantcu.com">ICantCU.com</a>   |   &copy; 2009, <a href="http://www.iCantCU.com">iCantCU.com</a>. All Rights Reserved.</font></p>
]]></description>
			<content:encoded><![CDATA[<p>It&#8217;s been awhile since I&#8217;ve posted.  We&#8217;ve had a bunch of things going on that took (and still take) priority.  Friday afternoon I visited Dr. Garg for an appointment.  He is my retina doc.  I was hopeful that Dr. Garg would spot something that could be corrected.  My vision has been mired around 20/400 for the last eight months or so.</p>
<p>Unfortunately, Dr. Garg didn&#8217;t notice anything new.  When I asked him his opinion on why my vision has deteriorated he told me that the multiple issues of congenital glaucoma, cornea and cataract surgeries, and a retina that was &#8220;pooping out&#8221; (his words,) were the reasons.  He explained that while he didn&#8217;t notice any problems with my retina he said that age and everything going on with my eye causes it to &#8220;wear out.&#8221;  He said that, like a favorite shirt that you wear often, each time you wear it and then wash it, it starts to wear out over time.  He told me to take zinc and extra vitamin C (along with my current multivitamin) to keep the cells in the retina alive and healthy for as long as possible.</p>
<p>I was obviously disappointed that he didn&#8217;t find something that could be corrected which would then give me improved visual acuity.  On the bright side, if there is one, I will cut back on all the specialist appointments to twice per year for each.  If there is a problem, I&#8217;ll first try my local ophthalmologist.</p>
<p>As I continue to look for things to help me see stuff I can&#8217;t, I&#8217;ve found an app for my iPhone that is a great magnifier.  It is the only app I&#8217;ve ever paid for and bought it after trying most if not all of the free magnifier apps.  It is <a href="http://click.linksynergy.com/fs-bin/stat?id=YxoR48sxbdY&#038;offerid=146261&#038;type=3&#038;subid=0&#038;tmpid=1826&#038;RD_PARM1=http%253A%252F%252Fitunes.apple.com%252Fus%252Fapp%252Fmagnifier-capture-micro-world%252Fid339741159%253Fmt%253D8%2526uo%253D4%2526partnerId%253D30" target="itunes_store">Magnifier &#8211; Capture the Micro World! by Game Lingo</a>.  I tried it the other day when I was home alone and wanted to know the serving size and calorie count of walnuts.  I was very excited when I was able to use my iPhone rather than take the bag into my office and put it under my reading machine.  I&#8217;ve been hoping for a good app for the iPhone because I just didn&#8217;t want to carry something else in my pocket.  I&#8217;ve been looking for a good hand-held magnifier, whether it be a regular magnifying glass or a digital device like the <a href="http://www.enhancedvision.com/low-vision-product-line/pebble-hand-held-portable-electronic-magnifier.html">Pebble from Enhanced Vision</a>, for the last six months or so.  Once I use the app more, I&#8217;ll post a more in-depth review.</p>
<p><font size="1"><a href="http://www.iCantCU.com/2011/05/15/retina-check/">Retina Check</a> is a post from: <a href="http://icantcu.com">ICantCU.com</a>   |   &copy; 2009, <a href="http://www.iCantCU.com">iCantCU.com</a>. All Rights Reserved.</font></p>
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		<title>A Long Day</title>
		<link>http://www.iCantCU.com/2010/01/16/a-long-day/</link>
		<comments>http://www.iCantCU.com/2010/01/16/a-long-day/#comments</comments>
		<pubDate>Sat, 16 Jan 2010 06:41:21 +0000</pubDate>
		<dc:creator>david</dc:creator>
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		<guid isPermaLink="false">http://icantcu.com/?p=265</guid>
		<description><![CDATA[It has been a long day.  It started off with a trip to the retina specialist at 8:30 am.  We were a few minutes late, so only had to wait about 10 minutes in the waiting room.  Eliz had a cup of tea from the Senseo (or similar) machine, while I brought my own (my [...]<p><font size="1"><a href="http://www.iCantCU.com/2010/01/16/a-long-day/">A Long Day</a> is a post from: <a href="http://icantcu.com">ICantCU.com</a>   |   &copy; 2009, <a href="http://www.iCantCU.com">iCantCU.com</a>. All Rights Reserved.</font></p>
]]></description>
			<content:encoded><![CDATA[<p>It has been a long day.  It started off with a trip to the retina specialist at 8:30 am.  We were a few minutes late, so only had to wait about 10 minutes in the waiting room.  Eliz had a cup of tea from the Senseo (or similar) machine, while I brought my own (my favorite Teavana mix: Queen of Babylon and Rose Garden Rooibos.)  I was called back into the first exam room, where I would (try to) read the eye chart and go over my eye issues.  Kelly asked about any of my eye problems and then noticed we were from Media.  She said she grew up in Wallingford.  When Eliz told her we did as well, she mentioned that she graduated from Strath Haven in 2002.  I told her I graduated from Nether Providence and Eliz from Strath Haven and Kelly asked if I went to school with her mother since I was born in 1954.  I laughed and asked if I looked 55&#8230;  I guess if there&#8217;s going to be a mistake, that one isn&#8217;t bad at all.  She corrected my birth year to 1964 and we moved on to the eye chart.</p>
<p>Again, I was unable to read any of it until I flipped the pinhole cover down.  Like magic, the E appeared.  I then said I know the next line is S and L, but I can&#8217;t see it.  She told me I was wrong.  What!?!  It&#8217;s not S and L.  Now I had to know.  I moved the pinholes all around until it was as clear as it was going to be for me.  I guessed O for the second letter.  Try again.  D!, I said next.  That was it.  The first letter (don&#8217;t ask me why I don&#8217;t read them in order) looked like it could be an O, G, or C.  I guessed G in hopes of it being the GD line.  No such luck.  C was my next try and that was it.  Kelly mentioned that this chart is made up mostly of similar letters that repeat often, so my usual deduction that I&#8217;ve got a one in 26 chance which increases with every letter doesn&#8217;t work.  I&#8217;m actually going to have to read them.</p>
<p>Once I was finished with the eye chart, Kelly took us to another waiting room, where Eliz read me the story of the Penn State mascot in a recent addition to ESPN magazine.  Before we could finish, we were called to see the doctor.  <a href="http://www.midatlanticretina.com/search/search/get/6" target="_blank">Dr. Garg</a> asked me about my issues and mentioned that he had spoken to Dr. Pro about me.  He explained that even though my right eye doesn&#8217;t do much he still wanted to check it out.  Since my cornea is really cloudy and I have a pretty mature cataract in it, they would use an ultrasound to have a look.  He also explained a test they&#8217;d run on my left eye, to check for changes in the macular pigmentation.  Dye is injected via an IV (that&#8217;s iv, not roman numeral for 4) and pictures are taken.  After he mentioned the dye, I remembered that I had this test before.  The images are wicked.  Unfortunately, I didn&#8217;t have a flash drive on me to get the images.</p>
<p>I went into another exam room to have the ultrasound and then back to the second waiting room to wait on the angiography.  After a 10 minute wait, Tom called me back to have the angiography.  He took a couple of images of my eye before putting the dye in.  The dye made me feel nauseous for about a minute.  Tom took more images and left to give someone an OCT scan (which took him all of five minutes &#8212; about 1000x faster than mine took on Monday.)  He then came back into the room I was in to get two more pictures.</p>
<p>I waited in the angiography room for a few minutes until they called me to see the doctor again.  He explained what he thought was going on.  He increased my use of one drop to three times per day and added another drop to try and get the swelling down in the retina and cornea.  He suggested that I wait on having the cataract removed until I see him again in six weeks.</p>
<p>After three hours, we were out of there.  We headed down City Ave to pick up Jane from school.  She called me just before the ultrasound and said she wasn&#8217;t feeling well, which I knew when she left for school.  I also knew we&#8217;d be right down the street from her and could pick her up after the appointment if she couldn&#8217;t last the day at school.</p>
<p>After I spent an hour, or so, at home (at which time I found out my mom had gone into the hospital &#8212; more on that below,) we headed over to Viva Salon in Springfield.  They&#8217;ve been having a problem with a hydraulic base that was still under warranty.  We swapped out the bad base for the good one that has been in our car since the move and headed to my next eye appointment.</p>
<p>I had scheduled this appointment with John Ruffini, another NPHS alum, to talk to him about the cataract surgery (and before I knew of any retina issues.)  He had a look at my still dilated left eye and we discussed my options and the problems that could arise from taking out the cataract.  He also thought it was best to see how the eye reacts to the increased drops and new drop.  I have put off scheduling the cataract surgery because of moving the business and the fact that it could undo the partial cornea transplant.  My left eye has endured seven operations over the years, with another one imminent.  I&#8217;m tired of going through these procedures and the recovery with mediocre success.  The risk/reward factor isn&#8217;t great, though I would do anything to preserve any sight I still have.</p>
<p>After leaving John Ruffini&#8217;s office, we made a delivery in Holmes and stopped by a salon in Milmont Park to look at a styling chair that needs replacing.  We returned home at about 4:00 pm and had an alarm company tech waiting to convert our system.  It took him about two hours (the whole story will have to wait for another time.)</p>
<p>We were finally able to head to Riddle to visit my mom.  She went to the hospital at around 8:00 am this morning because she was having shortness of breath and chest pains.  The doctor wanted to keep her overnight for observation.  She seems to be okay, though uncomfortable because of the shingles.  We are hoping to pick her up and take her home tomorrow.</p>
<p><font size="1"><a href="http://www.iCantCU.com/2010/01/16/a-long-day/">A Long Day</a> is a post from: <a href="http://icantcu.com">ICantCU.com</a>   |   &copy; 2009, <a href="http://www.iCantCU.com">iCantCU.com</a>. All Rights Reserved.</font></p>
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Post tags: <a href="http://www.iCantCU.com/tag/1964/" rel="tag">1964</a>, <a href="http://www.iCantCU.com/tag/c-%c2%a0i/" rel="tag">C.  I</a>, <a href="http://www.iCantCU.com/tag/cataract/" rel="tag">cataract</a>, <a href="http://www.iCantCU.com/tag/chart/" rel="tag">chart</a>, <a href="http://www.iCantCU.com/tag/congenital-glaucoma/" rel="tag">congenital glaucoma</a>, <a href="http://www.iCantCU.com/tag/cornea/" rel="tag">cornea</a>, <a href="http://www.iCantCU.com/tag/dr-ayers/" rel="tag">Dr. Ayers</a>, <a href="http://www.iCantCU.com/tag/dr-garg/" rel="tag">Dr. Garg</a>, <a href="http://www.iCantCU.com/tag/dr-pro/" rel="tag">Dr. Pro</a>, <a href="http://www.iCantCU.com/tag/dr-ruffini/" rel="tag">Dr. Ruffini</a>, <a href="http://www.iCantCU.com/tag/eliz/" rel="tag">Eliz</a>, <a href="http://www.iCantCU.com/tag/espn-magazine/" rel="tag">espn magazine</a>, <a href="http://www.iCantCU.com/tag/eye/" rel="tag">eye</a>, <a href="http://www.iCantCU.com/tag/holmes/" rel="tag">Holmes</a>, <a href="http://www.iCantCU.com/tag/jane/" rel="tag">Jane</a>, <a href="http://www.iCantCU.com/tag/john-ruffini/" rel="tag">John Ruffini</a>, <a href="http://www.iCantCU.com/tag/kelly/" rel="tag">Kelly</a>, <a href="http://www.iCantCU.com/tag/l-%c2%a0now/" rel="tag">L.  Now</a>, <a href="http://www.iCantCU.com/tag/media/" rel="tag">Media</a>, <a href="http://www.iCantCU.com/tag/milmont-park/" rel="tag">Milmont Park</a>, <a href="http://www.iCantCU.com/tag/nether-providence/" rel="tag">nether providence</a>, <a href="http://www.iCantCU.com/tag/penn-state/" rel="tag">Penn State</a>, <a href="http://www.iCantCU.com/tag/penn-state-mascot/" rel="tag">penn state mascot</a>, <a href="http://www.iCantCU.com/tag/providence/" rel="tag">Providence</a>, <a href="http://www.iCantCU.com/tag/queen/" rel="tag">Queen</a>, <a href="http://www.iCantCU.com/tag/queen-of-babylon/" rel="tag">queen of babylon</a>, <a href="http://www.iCantCU.com/tag/retina/" rel="tag">retina</a>, <a href="http://www.iCantCU.com/tag/retina-specialist/" rel="tag">retina specialist</a>, <a href="http://www.iCantCU.com/tag/riddle/" rel="tag">Riddle</a>, <a href="http://www.iCantCU.com/tag/room/" rel="tag">room</a>, <a href="http://www.iCantCU.com/tag/rose-garden/" rel="tag">Rose Garden</a>, <a href="http://www.iCantCU.com/tag/springfield/" rel="tag">Springfield</a>, <a href="http://www.iCantCU.com/tag/strath-haven/" rel="tag">Strath Haven</a>, <a href="http://www.iCantCU.com/tag/strathhaven/" rel="tag">StrathHaven</a>, <a href="http://www.iCantCU.com/tag/swelling/" rel="tag">swelling</a>, <a href="http://www.iCantCU.com/tag/teavana/" rel="tag">Teavana</a>, <a href="http://www.iCantCU.com/tag/tom/" rel="tag">Tom</a>, <a href="http://www.iCantCU.com/tag/viva-salon/" rel="tag">Viva Salon</a>, <a href="http://www.iCantCU.com/tag/wallingford/" rel="tag">Wallingford</a>, <a href="http://www.iCantCU.com/tag/wills-eye/" rel="tag">wills eye</a><br/>
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		<title>Time to See a Retina Specialist</title>
		<link>http://www.iCantCU.com/2010/01/14/time-to-see-a-retina-specialist/</link>
		<comments>http://www.iCantCU.com/2010/01/14/time-to-see-a-retina-specialist/#comments</comments>
		<pubDate>Thu, 14 Jan 2010 06:47:48 +0000</pubDate>
		<dc:creator>david</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
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		<guid isPermaLink="false">http://icantcu.com/?p=259</guid>
		<description><![CDATA[I received a call from Dr. Pro late this afternoon regarding my OCT scan from Monday.  Before the call, Dr. Pro talked with Dr. Ayers to discuss the scan.  They both agreed that there is swelling in the retina.  Dr. Pro told me that sometimes this occurs when the IOP is low, which mine has [...]<p><font size="1"><a href="http://www.iCantCU.com/2010/01/14/time-to-see-a-retina-specialist/">Time to See a Retina Specialist</a> is a post from: <a href="http://icantcu.com">ICantCU.com</a>   |   &copy; 2009, <a href="http://www.iCantCU.com">iCantCU.com</a>. All Rights Reserved.</font></p>
]]></description>
			<content:encoded><![CDATA[<p>I received a call from Dr. Pro late this afternoon regarding my OCT scan from Monday.  Before the call, Dr. Pro talked with Dr. Ayers to discuss the scan.  They both agreed that there is swelling in the retina.  Dr. Pro told me that sometimes this occurs when the IOP is low, which mine has been since my trab in 2003.  He didn&#8217;t think it would come on all of a sudden from low IOP though.  My IOP has been between five and seven at just about every eye appointment I&#8217;ve had since spring or summer 2003 (except for that dramatic increase after the partial cornea transplant when it rose so quickly it made me vomit multiple times on Friday, 5 Dec 2008 &#8212; the day after the surgery.)</p>
<p>Dr. Pro recommended a couple of retina specialists at Wills Eye, who also have an office at the Pagoda Building in Bala Cynwyd.  It was too late in the day to get an appointment today, so I&#8217;ll call them tomorrow and set something up.  I&#8217;d like to get something quickly to stop further decrease in my vision.  I already have an appointment with my local ophthalmologist, John Ruffini, on Friday and will discuss the scan, my options, and the cataract (which was the original reason I made the appointment.)</p>
<p><font size="1"><a href="http://www.iCantCU.com/2010/01/14/time-to-see-a-retina-specialist/">Time to See a Retina Specialist</a> is a post from: <a href="http://icantcu.com">ICantCU.com</a>   |   &copy; 2009, <a href="http://www.iCantCU.com">iCantCU.com</a>. All Rights Reserved.</font></p>
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		<title>Socks</title>
		<link>http://www.iCantCU.com/2009/09/24/socks/</link>
		<comments>http://www.iCantCU.com/2009/09/24/socks/#comments</comments>
		<pubDate>Thu, 24 Sep 2009 21:11:40 +0000</pubDate>
		<dc:creator>david</dc:creator>
				<category><![CDATA[glaucoma study]]></category>
		<category><![CDATA[colored stripe]]></category>
		<category><![CDATA[congenital glaucoma]]></category>
		<category><![CDATA[Eliz]]></category>
		<category><![CDATA[eye]]></category>
		<category><![CDATA[eye level]]></category>
		<category><![CDATA[glaucoma]]></category>
		<category><![CDATA[legally blind]]></category>
		<category><![CDATA[low vision]]></category>
		<category><![CDATA[Maryanne]]></category>
		<category><![CDATA[Socks]]></category>
		<category><![CDATA[table]]></category>
		<category><![CDATA[task]]></category>
		<category><![CDATA[time]]></category>
		<category><![CDATA[visually impaired]]></category>
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		<category><![CDATA[wills eye]]></category>

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		<description><![CDATA[After I posted the Glaucoma Study entry, Eliz said that I should have talked a bit more about the socks task.  At the school where Eliz used to teach and our kids went, they would call this the Socks work.  It was work for me.  Here&#8217;s how it worked&#8230;  There were seven socks pinned to [...]<p><font size="1"><a href="http://www.iCantCU.com/2009/09/24/socks/">Socks</a> is a post from: <a href="http://icantcu.com">ICantCU.com</a>   |   &copy; 2009, <a href="http://www.iCantCU.com">iCantCU.com</a>. All Rights Reserved.</font></p>
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			<content:encoded><![CDATA[<p>After I posted the Glaucoma Study entry, Eliz said that I should have talked a bit more about the socks task.  At the school where Eliz used to teach and our kids went, they would call this the Socks work.  It was work for me.  Here&#8217;s how it worked&#8230;  There were seven socks pinned to a board on a wall at eye level.  There was a table that was 30 x 60 up against the same wall that you could spread the 10 socks out on.  You then had to place the sock on the table under the correct match that was on the wall.</p>
<p>The first time I did this task, I was given the ground rules: I couldn&#8217;t touch the socks on the wall, I could get as close as I wanted, and, there was no time limit.  Most people had to this (and all the other tasks in the study) three times.  First time with both eyes, the second time with one eye covered, and the third time with the other eye covered.  I only had to do it (and all other tasks) twice since I have only the slightest vision in my right eye.  Believe me, 2x is enough.</p>
<p>I verified the ground rules with Maryanne before we started.  The last time I did this task the observer seemed to have a problem with the way I did this task.  She then started the clock and I began the task with my right eye covered.  It was covered from the last task and both Maryanne and I forgot to remove it.  I spread the socks out on the table, looking for the one I knew had no match.  It was easy to spot since it had cream or gray colored stripe near the top of the sock.  Now I just had to find the correct seven of the remaining nine and match them up.  So I hopped up on the table and zeroed in on a lighter gray sock on the board.  I found two socks that were similar in color and held them up close to the one on the board.  I could feel a pattern on one of the socks and knew that wasn&#8217;t the correct one.  I placed the other on the table beneath its mate.  This went on for about 18 minutes.  I missed two or three.</p>
<p>Now it was time for me to do it with both eyes.  It seemed silly for me to do it with both eyes, but at one of the other tasks I had done better with both eyes than with just my left, so I was up for seeing if it made a difference with this task.  I asked Maryanne to mix the socks up so that it would be a fair comparison.  She did and then started the timer.  I found the striped sock again and discarded it.  I hopped back onto the table and began matching.  This time it only took me about 11 minutes and I got &#8216;em all!  I think that was the first time in the study that I matched them all correctly.  I was happy until I realized it took me about a minute and a half to match a pair of socks.</p>
<p><font size="1"><a href="http://www.iCantCU.com/2009/09/24/socks/">Socks</a> is a post from: <a href="http://icantcu.com">ICantCU.com</a>   |   &copy; 2009, <a href="http://www.iCantCU.com">iCantCU.com</a>. All Rights Reserved.</font></p>
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