It’s Been a Few Weeks, Not Much New

I haven’t posted an update for about three weeks.  In that time, my vision still sucks and I’m wondering if I made the right choice to have the surgery.  I visited the retina specialist on Tuesday and was told that there isn’t much difference on the macular edema from the last visit about a month ago (and that was only slightly different from earlier this year.)  Seems a bit odd since during my appointment in May, he was able to point out the differences with my OCT scan then and the one earlier this year.  I was also told that I had a bit of swelling in my cornea (cornea edema.)  I don’t recall if that was an issue at my last cornea doc visit, but I’m scheduled to visit him this coming Tuesday (22 June,) so I’ll ask.  At this point, my vision seems to fluctuate between slightly better than before the surgery to worse than before the surgery.

It is so frustrating to me that nothing can be done to get me back to where I was just days after the surgery.  For about 10 days from 18 April, my vision was the best it had been in years.  Seems now like that was a cruel tease.  I’m getting tired of running to the doctors multiple times per month and not making progress.

In other news, Jacob is in Japan with a group of students from Westtown.  The last few days they’ve stayed in Kyoto and taken day trips by rail to other cities and sites (Hiroshima, Miyagima-guchi, Miyagima, Kinkaku-ji.)  Sunday, they move on to Tokyo where they meet their host families and prepare for a week at Tamagawa, Westtown’s sister school in Japan.  The family Jake is staying with has a boy a year or two younger than Jake and seems to live a bit of distance away from the school.  Eliz and I hope Jake can manage the train transfers…

Jane is looking forward to meeting her favorite band All Time Low on Sunday at meet and greet during The Bamboozle Roadshow.  Monday, she heads to softball camp at Villanova for a week.  She is also doing two weeks at an overnight camp at Bryn Mawr College in July and going to the Outer Banks in August with Margaret, Meghan, and Chris.  Did I mention she spent yesterday (Thursday) in New York with her friend Rachel?

Since Eliz and Jane won’t be here on Sunday, I’m planning a day of football…  Well, at least the last two games (Azzurri/All Whites and Brazil/Ivory Coast (sorry Slovakia/Paraguay, I’m not rolling out of bed at 7.30am.)  So, if you want to watch some footie, come on over!

Finally, I’ve lost another pound, which I am trying not to do.  I’m trying to maintain 163 pounds, but have been between 161 and 162 the last couple of days.  I’ve bumped to 1800 calories per day (from 1700) to try not to lose any additional weight.  It’s been tough this week, because we’ve eaten out four times and I’ve had to estimate my calories once and calculate my calories after the fact another time.  By the time I added ‘em up, I was short by 200 calories (ate 1600 calories) and it was too late to have anything else if I wanted to go to sleep by 2.00am.  At 161, I’m down 73 pounds since I started on 10 December 2009.

More next week, after my cornea doc appointment.

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Play Ball!

For the first time in a very long time, I got a chance to hit in a softball game.  I’ve been looking forward to it since the middle of April, after my surgery.  A few weeks ago, when my vision was heading in the wrong direction, I didn’t think I’d even try.  After my visit to Dr. Garg a couple of days ago and starting the drop regimen, my vision seemed to improve a little, so I was back in.

After some stretching (okay, very little stretching on the parents’ part,) we grabbed a ball and warmed up.  We threw the ball around like we do here: Jane to Eliz, then Eliz flips me the ball to me (I like to pretend I’m the second baseman and I’m turning a double play,) then I “fire” it to Jane.  Jane will sometimes just give me grounders that I field (without a glove, I don’t want someone to think I can actually play and throw me the ball) and throw to her.  After about 10 minutes of that the girls took the field and the parents went to the bench.

The batting order was determined by who went over and grabbed a bat first.  I hit fourth.  We went through the order all at once.  After three outs though, if there were any runners on base, they came in and the next batter started a “new inning.”  Wasn’t too different than t-ball for Jane about eight years ago.  Two of the first three parents struck out, while the other grounded out.  I felt no pressure stepping into the batters box, since I wasn’t going to be the first one to strike out.  I so wanted to make contact.  First pitch was a ball high.  Second one was over the inside part of the plate, strike one.  Third pitch was in the exact same spot, strike two.  The fourth pitch bounced on the front of the plate, ball two.  I probably saw that one the best and had the bounce been higher, I probably could have hit it — like in mush ball.  The fifth pitch looked good, but I swung and missed, strike three.  There were at least six strikeouts on our team, including Jane’s K of Eliz.

I noticed when I was batting that I couldn’t see as well if I looked straight at the pitcher, I had to glance toward first base to see the ball better.  That concerned me, because that is what seemed to be going on over the last couple of weeks.  My central vision wasn’t good.  I went out with Eliz to stand in rightfield.  As we were talking, I told her my vision wasn’t right.  Since I started the drops, I had noticed an improvement.  I even commented to Eliz on the ride to school that I’m glad I took the eye drop just before we left home and that I was seeing pretty well as I watched the cars on the road in front of us.  How could my vision have changed so quickly?  Was it the running around while we were throwing the ball around?  Was it bright sun?  I don’t know what the answer is, but my vision seems like it has gone back to how it was before I went to Dr. Garg on Tuesday.  Once I finish with this entry, I will investigate macular edema a little further.

After two more drops today, my vision is bad.  I had trouble reading most of the graphics on TV tonight and the text on the computer is fuzzy.  Fortunately, I have an appointment tomorrow with Dr. Ayres, the surgeon and cornea specialist.  Maybe he’ll have an idea about the macular edema and the quick change in my vision.  Most likely, I’ll have to wait until I go back to Dr. Garg on 15 June.  It’s funny, I think if I had hit the ball, I don’t think I would have noticed or been bothered by the decrease in vision.  I’m already looking forward to next years game…

Couple other short items…  I spoke to Dr. Rist, my gp, today.  She was calling to give me the results from a blood test I had yesterday after my appointment with her.  They were all very good and well within the normal range.  They were dramatically better than a year ago.  My blood pressure yesterday was also pretty good, 104/68.  All in all, the 1500 calories per day has been a good thing.  I will be increasing my caloric intake to about 1700 next week, since I’m within a few pounds of my goal.  The doctor calculated my metabolism and came up with that number.  I asked the doctor if the results were back from the throat swab she had done yesterday (I’ve had a sore throat since early last week, along with chills the first day or two,) but they haven’t as of today.  She prescribed Amoxicillin yesterday since she had noticed some things in my throat.

Also, we’ve been getting more calls to our design company (Digital Graphics Design) as of late.  I had to cancel a meeting with a prospective client earlier in the week since I wasn’t feeling well.  Today we got a call from a professional looking for a small website.  I am going to attempt this one on my own.  Let’s see how that goes.  When I took the call in the morning, I was seeing okay and was confident I could do it.  Now I’m not so sure.

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Visual Fields Test

My appointment with my glaucoma specialist went well, except for the fact that I was back to the 20/200 line and even that wasn’t as crisp as a my second PostOp appointment on 27 April (I also believe it was slightly worse than my unscheduled appointment with Dr. Ayres this past Friday.)  I’m glad everything looks great, but that isn’t helping me see better.  As per Dr. Pro’s (and Dr. Ayres’) recommendation, I’ve scheduled an appointment with Dr. Garg, the retina specialist I saw earlier this year.  I have a feeling I know how that appointment will go too.  Everything will look fine, but my vision will still suck.  Call me Nostradamus.  I’ll let you know how things go on 18 or 19 May.

Central Vision Visual Fields Test at Wills Eye

Central Vision Visual Fields Test at Wills Eye

One of the problem I’ve noticed is that I seem to have more blind spots, especially in my central vision.  When Eliz and I were working with Jane at softball, I noticed I had trouble following the ball when Eliz would flip the ball to me from three to five feet unless I looked to my right.  I’m not sure what the above test indicates, but since I don’t think I’ve ever had this particular visual fields test I don’t think there is anything to compare it to.

Visual Fields Test Machine in the Glaucoma Dept. at Wills Eye

Visual Fields Test Machine in the Glaucoma Dept. at Wills Eye

After my appointment at Wills Eye, Eliz and I walked up Walnut Street and stopped into the Associated Services for the Blind and Visually Impaired.  I had contacted them just before we moved Salon Supplies + Interiors and ForYourSalon.com out of that disaster of a building (which has been condemned, by the way.)  Between the move and setup of the business and waiting to see how things went with the surgery, I didn’t follow up.  Looking back, that seems dumb.  As it stands now, I don’t think things will improve dramatically, if at all.  You may say I’m a pessimist, but I disagree.  I would call myself a realist.  Sure, I can hope and wish, but I’ve been doing that since I was a small child.  Maybe I learn something and gain some confidence.

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