My Eye, My Dad and Our Day

I’d been looking forward to today for the past dozen days. Back on 10 Dec, I went to my retina doc, who, as previously mentioned, noticed three things that he thought were causing my vision to be worse than it had been. Two of three “issues” were cornea related, while one was retina related (and not correctable.) Today, I had an appointment with my cornea doc, Dr. Ayres.

As I was getting out of the shower, I heard the phone ring. Jacob answered it downstairs. Since he didn’t come up to mention the call, I figured it wasn’t for me. Minutes later, after taking my morning eye drop, Jake came in and told me my mom called. He went on to tell me that my mom said my dad was having shortness of breath and chest discomfort and they were going to the hospital. I sat back on the bed and thought about canceling my appointment. Since my mom didn’t ask to get me on the phone, I assumed it was a precautionary trip to the hospital (I later found out my dad didn’t want to go to the hospital, but since he mentioned chest pain, the Maris Grove staff wouldn’t take no for an answer.) I tried to reach my mom on her mobile, but didn’t get an answer. I felt selfish, but I decided I’d keep my doctor’s appointment.

We arrived early for my 9.45 appointment (seven minutes is early for us…) After we checked in, Eliz tried to call my mom. She got the voicemail (and knowing my mom can barely make and receive calls, didn’t leave a message. A minute or two later, Eliz’s phone rang and she handed the phone to me since she needed some insurance info for the receptionist. It was my mom. I spoke to her and then my dad. My mom told me what was going on. My dad told me, “Don’t count the money yet.” At that point, I felt I made the right decision to go to my appointment.

A few minutes later, I went back into (Eye) Pod 1. I was able to read the L (but not the S) on the SL line (which is the 20/200 line.) Dr. Ayres came in a few minutes later. He asked how things were going and I told him about my appointment 12 days earlier with Dr. Garg. He seemed to get defensive when I told him what Dr. Garg said. Dr. Ayres then had a look at both eyes. He started on the right one and quickly moved on to the left after saying, “That one is trash.” This I already knew. I haven’t seen anything but light with that eye since the last century… After he looked at the left eye he told me that it looked pretty similar as previous visits.

He said the transplant looked good, though was less than perfect. (It’s from a 69 year old donor and I’ve had it for two years.) He didn’t see signs of rejection. He said he could do another transplant if I wanted, but he didn’t think it could be too much better. The downside was too steep for me, so we’ll revisit that at a later date. Dr. Ayres also noticed a bit of haze behind the lens implanted in the cataract extraction in April of this year. It’s called posterior capsule opacity. It can be dealt with doing a procedure called YAG laser capsulotomy. He said there is very little downside to this, so I am scheduled to have this done on 20 January. I’m not sure if this counts as my 16th surgery or not…

Once we finished up with my appointment, we headed down Route 1 to Riddle Hospital to see my dad. We spent about three hours with him. The cardiologist met with all of us and said he didn’t think the problem was a heart issue. After running Jane to a friends for a birthday party and a trip to Newark DE to pick up a small order, we returned to Riddle at 5.15. We visited with my dad for about 45 minutes and then took my mom home, stopping for dinner on the way (she treated us to Ruby’s Diner.) My dad was tired and seemed to want us to go. Hopefully he gets some rest and is able to go home tomorrow.

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It’s Not Cuckoo Bananas, But It’s Not Good Either

It has been a busy week, so I haven’t had a chance, until now, to post an update on last Fridays appointment with Dr. Garg, the retina specialist.  Unlike two weeks ago when I went to the glaucoma doc, this appointment was lacking most of the nonsense.  By the end of the appointment, I wasn’t any closer to an answer than I was since late April.

The appointment started with the typical questions from a tech about how my vision was doing, if I was experiencing any pain or discomfort, etc.  Then it was time to read the chart with my left eye.  The E was not a problem.  The next line, C and D, I could see, but if I didn’t remember it I might have said G instead of C.  The next line, which I now know is DHN, I couldn’t see.  With the pinholes, I was able to make out the H.

She moved on to my right eye.  Good news there, I can still tell if a light is off or on if it is a foot or less away from my eye…  Yippee.  She then put, or should I say shot, drops into both eyes.  God only knows how many, but it was sure more than one of each.  One is to numb the eye to get IOP (pressure) readings, while the other was to dilate my eye.  While she was doing this, she left the chart on, so I continued to try to read it.  She then used a hand-held device to get the IOP (Dr. Ayres calls this device a glorified random number generator.)  IOP was nine in the left and mid to upper 20s in the right.  The previous week at my glaucoma appointment, it was eight in the left and 13 in the right using the standard device (the one that you put your chin in, press your head against the bar, and look at the blue light.)

She waited a minute or two and then tried to get another number on the right eye.  Meanwhile, I’m still trying to read the 20/100 line on the chart.  She then said I was cheating by continuing to attempt to read the line.  Eliz didn’t like what she said and asked how I was cheating if I was just trying to read the chart.  While the lady answered Eliz, I had my hand in front of my eye, trying to simulate the pinholes while still trying to read the line.  Hey, if you don’t want me to keep trying, shut the effing thing off!  As we got up to move to the next exam room, I glanced behind the chair where the chart is bounced off of a mirror and saw that the line was DHN.  Now maybe that was cheating.  How would that help me though?  It’s not like I could get a drivers license for reading the 20/100 line.

In the next room, Dr. Garg came in and asked some questions and then had a look.  He then told me that the only thing left to try were injections in the eye.  Before we try that though, he wanted to get another OCT scan to make sure the risk/reward was worth the attempt (actually, attempts, as it would take several injections over the course of a few months for it to work.)

Tom gave me the OCT scan a few minutes later, then we headed to another exam room.  After a minute or two, Dr. Garg came in and had a look at the scan.  He said that it wouldn’t be worth trying the injections as there was only a 15% chance of them helping me see better.  At that point, I said, “Okay, so there isn’t really anything you can do for me?”  “That’s right,” he replied.  He told me I could come back in five months (why?,) or sooner if I was having any other problems.  He did tell me to make sure that I see him, Dr. Ayres, Dr. Pro, or Dr. Ruffini frequently to get IOP readings.  Seems like ‘roids that I take 2x per day in the left eye could cause the pressure to rise.  Maybe it’s time to see Dr. House, Dr. Riviera, or Oscar Goldman…

So while my vision is not cuckoo bananas (a technical term Dr. Garg used at my last appointment in June,) it’s not good either.  So what do I do now?  Some days, my vision is better than others.  Today, for example, it sucked big time (I suppose that is a technical term I picked up somewhere along the way.)  Maybe I’ll see a little better tomorrow.  I’m not holding my breathe (but would if it would help…)

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Almost Unbelievable…

As you’ve read here over the past seven weeks, I’ve been pretty frustrated and miserable.  On the way to my my cornea specialist, Eliz and I were talking about what I was planning on discussing with Dr. Ayres.  I was going to tell him how tired I was running back and forth to all these eye specialists who couldn’t really figure out why my vision had deteriorated to 20/200 (close to my pre-surgery acuity) after I was able to read most of the 20/100 line a week after the surgery.  I was also going to ask Dr. Ayres to ease off some of the drops.  I was up to about 8 to 10 per day, and after some, my vision was blurry for varying lengths of time, reducing my vision further.

So we’re driving down Lancaster Ave. after dropping Jane at softball camp at Villanova and we turn on Preston and Steve on WMMR (Eliz is a huge fan.)  They were talking about some guy who was trying to get into the Guinness Book of Records by singing the lowest note ever.  The discussion somehow turned to the Oak Ridge Boys and their hit Elvira (warning, don’t click the link, you won’t be able to get the song out of your head…)  They were talking about how deep one of the members of the band could sing, were making fun of the song and then mentioning that one of the members was from Collingswood, NJ (it is in southern New Jersey.)  I was laughing so hard I was crying.  Tears were streaming down my face for over five minutes.  When they finally stopped, we were just passing St. Joe’s on City Ave.  I grabbed a tissue and wiped my eyes and began to look around.  Things looked clearer to me.  We stopped at a red light and I looked at the trees and buildings and told Eliz that things looked better than before the tears flowed.

We were only a minute or two away (his office is on Presidential Blvd. in the Pagoda Building, just off City Ave.)  We sat in the car for a minute or two since we were early.  I looked at the building and the trees and things still looked better.  Once we walked in, things were still tough to see inside.  We took the elevator to his office and signed in.  Eliz grabbed a magazine and started looking through it.  I glanced at the front cover, but couldn’t make out the title, so I thought my vision was returning to its current normal.  After a few minutes, I was called back to Pod 3 (which I suggested on multiple occasions to rename EyePod 3.)  Tia was the name of the tech and she questioned me about what meds I’ve been taking and how my vision was doing.  Then she turned on the eye chart.  E looked clearer.  So did SL.  I was then able to make out the L first, then the P in the OPLB line.  (As I’ve mentioned before, I know all the lines down to DAO6, the 20/60 line, so I’m never 100% sure I’m actually seeing them.)  There is no alternative 20/100 line other then the OPLB line, like there are for the 20/80 line and better, so I was given credit for seeing the P and the L.  With the pinholes, I tried both the CAV8 (20/80) line and its numerical alternative without being able to read anything.

Dr. Ayres came in a few minutes later and I told him about what happened on the way into the appointment.  He then took a look and had me blink twice.  He noticed that my eye was losing the tear film in about five seconds (he didn’t use a stopwatch, instead opting for the technical Philadelphia, as in one Philadelphia, two Philadelphia, etc.  We always used Mississippi when we played football as kids.  You could blitz on five Mississippi…)  He then explained to Eliz and I that 10 seconds is the norm for the tear film to last after blinking.  I’m not surprised that my eyes aren’t normal.  Never have been, never will be.  He also mentioned that once the eye begins to dry, the visual acuity begins to fall.  He gave me more drops, over the counter lubricating drops for during the day, and a prescription for a drop to use at bedtime.  It is an antibiotic that evidently is somewhat thick.  It is used for infections in the eye, but I was instructed to close my eye and massage it onto the edge of my upper and lower lids.  I’ll let you know how that goes in a few days since I haven’t used it yet.  Dr. Ayres also took me off one of the steroid drops (two less drops per day) and Muro 128 (four times per day.)

Can it be that at least part of my current eye issues were discovered because of Preston and Steve?  Yup!  So, thank you Preston and Steve (and Kathy, Casey, Nick, Marisa, the Oak Ridge Boys, and that guy trying to sing the lowest note!)  Now I just have to hope that the new drop works.  Wish me luck (again…)

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