iCantCU.com » retina

Retina Check

david — Sun, 15 May 2011 19:52:40 +0000

It’s been awhile since I’ve posted. We’ve had a bunch of things going on that took (and still take) priority. Friday afternoon I visited Dr. Garg for an appointment. He is my retina doc. I was hopeful that Dr. Garg would spot something that could be corrected. My vision has been mired around 20/400 for the last eight months or so.

Unfortunately, Dr. Garg didn’t notice anything new. When I asked him his opinion on why my vision has deteriorated he told me that the multiple issues of congenital glaucoma, cornea and cataract surgeries, and a retina that was “pooping out” (his words,) were the reasons. He explained that while he didn’t notice any problems with my retina he said that age and everything going on with my eye causes it to “wear out.” He said that, like a favorite shirt that you wear often, each time you wear it and then wash it, it starts to wear out over time. He told me to take zinc and extra vitamin C (along with my current multivitamin) to keep the cells in the retina alive and healthy for as long as possible.

I was obviously disappointed that he didn’t find something that could be corrected which would then give me improved visual acuity. On the bright side, if there is one, I will cut back on all the specialist appointments to twice per year for each. If there is a problem, I’ll first try my local ophthalmologist.

As I continue to look for things to help me see stuff I can’t, I’ve found an app for my iPhone that is a great magnifier. It is the only app I’ve ever paid for and bought it after trying most if not all of the free magnifier apps. It is Magnifier – Capture the Micro World! by Game Lingo. I tried it the other day when I was home alone and wanted to know the serving size and calorie count of walnuts. I was very excited when I was able to use my iPhone rather than take the bag into my office and put it under my reading machine. I’ve been hoping for a good app for the iPhone because I just didn’t want to carry something else in my pocket. I’ve been looking for a good hand-held magnifier, whether it be a regular magnifying glass or a digital device like the Pebble from Enhanced Vision, for the last six months or so. Once I use the app more, I’ll post a more in-depth review.

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Post tags: afternoon, app, cataract surgeries, check, congenital glaucoma, Dr. Garg, free magnifier, magnifier, retina, visual acuity

A Frustrating Week

david — Fri, 28 May 2010 05:16:24 +0000

Well, it has been a week of total frustration. Since mid-afternoon last Thursday, my vision has not been good. Every day when I wake up I hope that it will be better, but then I open my eyes. I’ve got just under three weeks until I visit the retina doc again, but at this point, it seems pretty obvious to me that the drops aren’t working.

I’m pretty sure I’ve been less than a joy to be around this past week. I have just been miserable. Even watching the Flyers advance to the cup finals brought me down. I was there in 1997. Not this time. No point in going. I’ll watch it on TV though.

I’m tired of not being able to find things and having to ask Eliz for help. I’m tired of bumping into door jams because I go a little wide right. I’m tired of waiting and hoping. I want to move forward.

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Post tags: Eliz, flyers, frustration, jams, last thursday, point, retina, Thursday, vision, week

Surgery No. 14 is Set

david — Sat, 06 Mar 2010 05:43:12 +0000

Over the past 10 days, I’ve been to three different doctors. I’m starting to feel like my parents. The most important of the three was two days ago. My appointment was with Dr. Ayres, the one who did the partial cornea transplant (DSEK) in December 2008. He thought that the cataract I’ve had in my left eye for sometime could be the culprit in my steadily worsening vision, but he sent me to Dr. Garg, a retina specialist, to rule out a retina issue. Dr. Ruffini also thought I should consider having the cataract removed.

I was not looking forward to another surgery on my left eye until things started going downhill in July. The problem was, none of the doctors knew what was causing the problem. The cataract didn’t seem much worse than a few months earlier, if at all. After going from one specialist to another, it was determined it wasn’t a glaucoma issue or a retina issue. Lets just hope it is the cataract that is the issue.

I’m having the cataract removed on 15 April (so I guess I’ll send our taxes in early…) There is also a possibility that I’ll have another DSEK (endothelial transplant.) The donor endothelia will be in the OR, just in case. Evidently, removing the cataract risks damaging my now 70 year old endothelia (along with the other common risks associated with this in most people and specific risks for unique individuals, such as myself, with other eye issues.)

I am disappointed that I have to wait that long for the surgery. I joked with Dr. Ayres that I was ready to have it yanked on Wednesday. I’m sure I have been less than pleasant to be around at home. Tonight, I was home alone while Eliz, the kids, and a few of Jane’s friends went to see Alice in Wonderland — I miss going to the movies. My frustration level is high and it takes me so long to do many basic things. I am so ready to get the cataract out, it is hard not to get excited. I’m trying to temper the excitement, since it only leads to disappointment after the surgery (at least after the last three.)

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Post tags: Alice, alice in wonderland, cataract, cornea transplant, Dr. Ayres, Dr. Garg, Dr. Ruffini, DSEK, eye, frustration level, issue, Jane, retina, retina specialist, surgery

Small Update on My Vision

david — Mon, 25 Jan 2010 06:19:16 +0000

I’ve been on the eye drop Xibrom for about 10 days now, along with an increase in the number of times per day I take Predforte (from 1x per day to 3x per day.) Not only hasn’t this regimen helped, but my vision continues to deteriorate. I visit the retina doc in about a month and the cornea doc a week later. I’m beginning to wonder what kind of shape my vision will be in at that point. It can’t be that my local ophthalmologist, the glaucoma specialist, cornea specialist, and retina specialist all missed something, could it?

I had a blood test last week to test for a whole bunch of things including Lyme disease, diabetes. According to the less than warm and fuzzy card I received in the mail on Saturday from my doctor’s office, everything was normal. I have to tell you that I get more personalized mail from Publishers Clearing House. I was kind of hoping there would be something in the blood test that might give a clue to my vision. No luck. I will call my doctor tomorrow to see if she can elaborate further on my test.

At this point, I’m also wondering about what to do about making a living. I would love to try to continue to build ForYourSalon.com, but that has become increasingly more difficult for me to do. I haven’t really worked for anyone but myself and Eliz since 1985. What could I do? More importantly, who would hire me? I’m interested in your opinion. Comment here or over at Facebook (www.facebook.com/davidbenj) if you are a friend.

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Post tags: cornea specialist, day, glaucoma specialist, publishers clearing house, retina, retina specialist, specialist, test, vision, Xibrom

A Long Day

david — Sat, 16 Jan 2010 06:41:21 +0000

It has been a long day. It started off with a trip to the retina specialist at 8:30 am. We were a few minutes late, so only had to wait about 10 minutes in the waiting room. Eliz had a cup of tea from the Senseo (or similar) machine, while I brought my own (my favorite Teavana mix: Queen of Babylon and Rose Garden Rooibos.) I was called back into the first exam room, where I would (try to) read the eye chart and go over my eye issues. Kelly asked about any of my eye problems and then noticed we were from Media. She said she grew up in Wallingford. When Eliz told her we did as well, she mentioned that she graduated from Strath Haven in 2002. I told her I graduated from Nether Providence and Eliz from Strath Haven and Kelly asked if I went to school with her mother since I was born in 1954. I laughed and asked if I looked 55… I guess if there’s going to be a mistake, that one isn’t bad at all. She corrected my birth year to 1964 and we moved on to the eye chart.

Again, I was unable to read any of it until I flipped the pinhole cover down. Like magic, the E appeared. I then said I know the next line is S and L, but I can’t see it. She told me I was wrong. What!?! It’s not S and L. Now I had to know. I moved the pinholes all around until it was as clear as it was going to be for me. I guessed O for the second letter. Try again. D!, I said next. That was it. The first letter (don’t ask me why I don’t read them in order) looked like it could be an O, G, or C. I guessed G in hopes of it being the GD line. No such luck. C was my next try and that was it. Kelly mentioned that this chart is made up mostly of similar letters that repeat often, so my usual deduction that I’ve got a one in 26 chance which increases with every letter doesn’t work. I’m actually going to have to read them.

Once I was finished with the eye chart, Kelly took us to another waiting room, where Eliz read me the story of the Penn State mascot in a recent addition to ESPN magazine. Before we could finish, we were called to see the doctor. Dr. Garg asked me about my issues and mentioned that he had spoken to Dr. Pro about me. He explained that even though my right eye doesn’t do much he still wanted to check it out. Since my cornea is really cloudy and I have a pretty mature cataract in it, they would use an ultrasound to have a look. He also explained a test they’d run on my left eye, to check for changes in the macular pigmentation. Dye is injected via an IV (that’s iv, not roman numeral for 4) and pictures are taken. After he mentioned the dye, I remembered that I had this test before. The images are wicked. Unfortunately, I didn’t have a flash drive on me to get the images.

I went into another exam room to have the ultrasound and then back to the second waiting room to wait on the angiography. After a 10 minute wait, Tom called me back to have the angiography. He took a couple of images of my eye before putting the dye in. The dye made me feel nauseous for about a minute. Tom took more images and left to give someone an OCT scan (which took him all of five minutes — about 1000x faster than mine took on Monday.) He then came back into the room I was in to get two more pictures.

I waited in the angiography room for a few minutes until they called me to see the doctor again. He explained what he thought was going on. He increased my use of one drop to three times per day and added another drop to try and get the swelling down in the retina and cornea. He suggested that I wait on having the cataract removed until I see him again in six weeks.

After three hours, we were out of there. We headed down City Ave to pick up Jane from school. She called me just before the ultrasound and said she wasn’t feeling well, which I knew when she left for school. I also knew we’d be right down the street from her and could pick her up after the appointment if she couldn’t last the day at school.

After I spent an hour, or so, at home (at which time I found out my mom had gone into the hospital — more on that below,) we headed over to Viva Salon in Springfield. They’ve been having a problem with a hydraulic base that was still under warranty. We swapped out the bad base for the good one that has been in our car since the move and headed to my next eye appointment.

I had scheduled this appointment with John Ruffini, another NPHS alum, to talk to him about the cataract surgery (and before I knew of any retina issues.) He had a look at my still dilated left eye and we discussed my options and the problems that could arise from taking out the cataract. He also thought it was best to see how the eye reacts to the increased drops and new drop. I have put off scheduling the cataract surgery because of moving the business and the fact that it could undo the partial cornea transplant. My left eye has endured seven operations over the years, with another one imminent. I’m tired of going through these procedures and the recovery with mediocre success. The risk/reward factor isn’t great, though I would do anything to preserve any sight I still have.

After leaving John Ruffini’s office, we made a delivery in Holmes and stopped by a salon in Milmont Park to look at a styling chair that needs replacing. We returned home at about 4:00 pm and had an alarm company tech waiting to convert our system. It took him about two hours (the whole story will have to wait for another time.)

We were finally able to head to Riddle to visit my mom. She went to the hospital at around 8:00 am this morning because she was having shortness of breath and chest pains. The doctor wanted to keep her overnight for observation. She seems to be okay, though uncomfortable because of the shingles. We are hoping to pick her up and take her home tomorrow.

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Post tags: 1964, C. I, cataract, chart, congenital glaucoma, cornea, Dr. Ayers, Dr. Garg, Dr. Pro, Dr. Ruffini, Eliz, espn magazine, eye, Holmes, Jane, John Ruffini, Kelly, L. Now, Media, Milmont Park, nether providence, Penn State, penn state mascot, Providence, Queen, queen of babylon, retina, retina specialist, Riddle, room, Rose Garden, Springfield, Strath Haven, StrathHaven, swelling, Teavana, Tom, Viva Salon, Wallingford, wills eye

Time to See a Retina Specialist

david — Thu, 14 Jan 2010 06:47:48 +0000

I received a call from Dr. Pro late this afternoon regarding my OCT scan from Monday. Before the call, Dr. Pro talked with Dr. Ayers to discuss the scan. They both agreed that there is swelling in the retina. Dr. Pro told me that sometimes this occurs when the IOP is low, which mine has been since my trab in 2003. He didn’t think it would come on all of a sudden from low IOP though. My IOP has been between five and seven at just about every eye appointment I’ve had since spring or summer 2003 (except for that dramatic increase after the partial cornea transplant when it rose so quickly it made me vomit multiple times on Friday, 5 Dec 2008 — the day after the surgery.)

Dr. Pro recommended a couple of retina specialists at Wills Eye, who also have an office at the Pagoda Building in Bala Cynwyd. It was too late in the day to get an appointment today, so I’ll call them tomorrow and set something up. I’d like to get something quickly to stop further decrease in my vision. I already have an appointment with my local ophthalmologist, John Ruffini, on Friday and will discuss the scan, my options, and the cataract (which was the original reason I made the appointment.)

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Post tags: appointment, bala cynwyd, call, cataract, congenital glaucoma, cornea, cornea transplant, Dr. Ayers, Dr. Pro, Dr. Ruffini, eye, iop, John Ruffini, late in the day, retina, ruffini, swelling, wills eye

Image of My OCT Scan

david — Tue, 12 Jan 2010 17:53:51 +0000

Just a quick update to add my OCT image. I’ve added here and to last night’s post (so you can compare mine with the normal one posted on the Vitreous Retina Macula Consultants of New York website.) I kind of think mine looks like two people laying on the beach on their bellies and seeing just their backs and butts. I’m hoping to hear from the doctor today or tomorrow.

My OCT scan from 11 Jan 2010.

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Post tags: bellies, butts, caption, cataract, cornea, Dr. Pro, glaucoma, image, mine, New York, OCT, pagoda building, retina, update, vitreous retina, wills eye

OCT Retina Test

david — Tue, 12 Jan 2010 06:36:14 +0000

What an adventure today at the Pagoda Building at 100 Presidential Ave. After a few minutes in the waiting area, we were called back. I followed Irene into a very dimly lit room, stumbling slightly on one of the stools. I sat on a stool that seemed to be a bit too high for the machine I was supposed to put my chin in while pressing my forehead against the bar. The device that was going to take the images and measurements of my retina looked similar to an older (circa 1998) surveillance camera. Inside the lens was this cool blue light, slightly lighter than the blue light on the machine that reads your IOP, that looked similar to something in a sci fi movie with a thin red line across the horizon that looked like a laser.

My good fortune was that the machine was brand spanking new and both Irene and Todd had not yet mastered it. Irene couldn’t get a good set of images and kept asking me if I was diabetic, which I am not. She then said that the cataract in that eye must be really dense, because they couldn’t get a clear image. She then decided to dilate my eye. (This test was only for the left eye. The right is waiting for the Six Million Dollar Man eye and I haven’t spotted those at Radio Shack yet.) Dr. Pro had asked that the eye be dilated, but Irene thought it wasn’t necessary at the beginning. While my pupil was dilating, Irene stepped out of the room. Todd, Eliz, and I talked about the machine. I asked Todd a question and didn’t get a response. Eliz then answered for him. Seems he didn’t realize I couldn’t see him and he nodded yes to answer my question. After about 10 minutes, Irene walked back in, but Todd wanted his turn on the machine, so Irene coached him. He couldn’t get a good image either. Irene’s turn again.

After about 10 to 15 minutes of trying, we were asked to go wait in another waiting area. We only waited there a couple of minutes and then it was back into the hot seat for me (and I didn’t stumble in the room this time since my eye was dilated…) Finally, Irene was able to get the correct images the doctor ordered. I asked if I could have one put on my flash drive. Irene said no, but said she’d print one out. As she looked through all the images, she realized that they weren’t that good. She asked if she could try again on getting a good image. At this point, either Eliz or I mentioned the Endothelial transplant from December 2008. She then said that might be why she couldn’t get a good image. Whatever. She got some images she was happy with and printed one out for me… In black and white! The doctor will have a look in a day or two. I’ll call on Wednesday to see what the story is.

I’ve got a scanner issue that is stopping me from uploading the image. Hopefully I’ll figure it out tomorrow and have the image up here then. I know it doesn’t look like this image:

OCT demonstrating normal retinal architecture.

My OCT scan from 11 Jan 2010.

So now I have to wait to hear from the doctor. My image is a bit more “hilly” than the image above. I’m hopeful this is the reason for my latest issue. I also hope this can be fixed.

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Post tags: adventure today, caption, cataract, cornea, Dr. Pro, Eliz, eye, glaucoma, good fortune, image, Irene, machine, OCT, retina, room, surveillance camera, thin red line, Todd, waiting area, wills eye