It’s Been a Few Weeks, Not Much New

I haven’t posted an update for about three weeks.  In that time, my vision still sucks and I’m wondering if I made the right choice to have the surgery.  I visited the retina specialist on Tuesday and was told that there isn’t much difference on the macular edema from the last visit about a month ago (and that was only slightly different from earlier this year.)  Seems a bit odd since during my appointment in May, he was able to point out the differences with my OCT scan then and the one earlier this year.  I was also told that I had a bit of swelling in my cornea (cornea edema.)  I don’t recall if that was an issue at my last cornea doc visit, but I’m scheduled to visit him this coming Tuesday (22 June,) so I’ll ask.  At this point, my vision seems to fluctuate between slightly better than before the surgery to worse than before the surgery.

It is so frustrating to me that nothing can be done to get me back to where I was just days after the surgery.  For about 10 days from 18 April, my vision was the best it had been in years.  Seems now like that was a cruel tease.  I’m getting tired of running to the doctors multiple times per month and not making progress.

In other news, Jacob is in Japan with a group of students from Westtown.  The last few days they’ve stayed in Kyoto and taken day trips by rail to other cities and sites (Hiroshima, Miyagima-guchi, Miyagima, Kinkaku-ji.)  Sunday, they move on to Tokyo where they meet their host families and prepare for a week at Tamagawa, Westtown’s sister school in Japan.  The family Jake is staying with has a boy a year or two younger than Jake and seems to live a bit of distance away from the school.  Eliz and I hope Jake can manage the train transfers…

Jane is looking forward to meeting her favorite band All Time Low on Sunday at meet and greet during The Bamboozle Roadshow.  Monday, she heads to softball camp at Villanova for a week.  She is also doing two weeks at an overnight camp at Bryn Mawr College in July and going to the Outer Banks in August with Margaret, Meghan, and Chris.  Did I mention she spent yesterday (Thursday) in New York with her friend Rachel?

Since Eliz and Jane won’t be here on Sunday, I’m planning a day of football…  Well, at least the last two games (Azzurri/All Whites and Brazil/Ivory Coast (sorry Slovakia/Paraguay, I’m not rolling out of bed at 7.30am.)  So, if you want to watch some footie, come on over!

Finally, I’ve lost another pound, which I am trying not to do.  I’m trying to maintain 163 pounds, but have been between 161 and 162 the last couple of days.  I’ve bumped to 1800 calories per day (from 1700) to try not to lose any additional weight.  It’s been tough this week, because we’ve eaten out four times and I’ve had to estimate my calories once and calculate my calories after the fact another time.  By the time I added ’em up, I was short by 200 calories (ate 1600 calories) and it was too late to have anything else if I wanted to go to sleep by 2.00am.  At 161, I’m down 73 pounds since I started on 10 December 2009.

More next week, after my cornea doc appointment.

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A Frustrating Week

Well, it has been a week of total frustration.  Since mid-afternoon last Thursday, my vision has not been good.  Every day when I wake up I hope that it will be better, but then I open my eyes.  I’ve got just under three weeks until I visit the retina doc again, but at this point, it seems pretty obvious to me that the drops aren’t working.

I’m pretty sure I’ve been less than a joy to be around this past week.  I have just been miserable.  Even watching the Flyers advance to the cup finals brought me down.  I was there in 1997.  Not this time.  No point in going.  I’ll watch it on TV though.

I’m tired of not being able to find things and having to ask Eliz for help.  I’m tired of bumping into door jams because I go a little wide right.  I’m tired of waiting and hoping.  I want to move forward.

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This and That

I’ve been waiting for this week since the end of January, because I’m going to see the retina specialist on Friday.  I’m hoping he can do a PAM test on me.  No, it’s not part of the Aunt Jemima treatment, it stands for potential acuity meter.  It will let me, and, more importantly, my team of eye specialists know how much of the “current” vision loss is due to the cataract in my left eye.  I would hope it would come back 20/200 or better.  If not, it might be time to rent a gun and buy a bullet.  (Relax, I’m only joking.  I’m worth far too much dead to take my own life.)  Even without a PAM test, I’m hoping that Dr. Garg (retina) will give the okay for me to have Dr. Ayers (cornea) takeout the cataract.  As much as I’ve loved the snow this winter, I don’t want it to foul up my 8:45am appointment in Bala on Friday.  I see Dr. Ayers on 3 March and I’d like to schedule the cataract surgery then.  I’ve gotta do something, it seems like my vision is getting worse by the day.  My frustration level is extremely high.

On Wednesday, I’ve got an appointment with my GP.  It was postponed from 10 Feb due to the little bit of snow we had (not to mention the lack of power and heat too.)  When I saw Dr. Rist on 9 Dec, she told me to lose weight.  Since then I’ve eaten only about 1500 calories per day.  On days that I did some physical work like shovel snow, move our store inventory, etc., I would eat more calories as a reward.  As of this morning, I am down 41 pounds.  I’m interested to see what she says.

Jake is spending the week living at school, something he will have to do for his junior and senior years at Westtown.  We dropped him off on Sunday and will pick him up this Sunday.  He was really looking forward to it.  Then, when we got there, he noticed a Super Nintendo game system (circa 1991.)  The seniors whose room he and his friend are staying in left them a note saying that they could play with the system.  We have a couple of games from the video store that Jake has always wanted to play, but we never had the system (well, we had it, but upgraded to something else before he was born.)  I’m worried that school work might not be first on his mind this week.  Eliz picked him up some candy from BJ’s the other day.  You know, BJ’s doesn’t sell anything in small amounts.  She got him a variety bag of candy bars (not the fun size, the normal size) and a bag with god know how many packages of Skittles in it.  He posted today on Facebook that he was selling the candy.  Prices were $.50 for candy available in the school store and $1.00 for candy not carried in the school store.  I’m interested to see what he does with the funds, though his intentions could be philanthropic.

Jane found her letters from Tabitha tonight.  Tabitha was conjured up when Jake literally lost his first tooth.  It either fell out onto the ground or he swallowed it with his lunch that day at Granite Run Mall.  He was disappointed because he was so looking forward to putting it under his pillow for the toothfairy.  That night, after he went to bed, I wrote a letter from Tabitha, a toothfair from the North American office.  I expected it to be a one and done sort of thing, but when he lost his next tooth, we was just as excited to get another letter as he was to get the money.  And of course, if you do it for one, the other has to have it too…  Jane actually got a letter or two before she even lost a tooth.  She would sometimes leave notes for Tabitha under her pillow.  Jane laughs at the letters now, but she had fun reading them tonight.  She said each one had a little education, like Sesame Street.  I also would include things that I thought would boost their confidence and nudges on nutrition.  One day I’ll post them or publish them.

It is amazing how easy 700 words comes off my fingertips these days…  So much for a short update.  More later this week on the retina appointment.

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